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Perearst: ALS haiguse inimesed vajavad abi lõpul

Perearst: ALS haiguse inimesed vajavad abi lõpul

EN

Family doctor: People with ALS need help at the end.

Stein-Anders Rasmussen suri mullu novembris. Tal oli raskelt haige . Ta suutis liigutada ainult silmi. Ta soovis u, kuid Eestis see ei ole lubatud. Tema pere usub, et . Sest praegune olukord .
Tema abikaasa Anne-Ly rääkis, et oli Stein-Andersi nutt. Ta nuttis rõõmust, kui tütar Birgit rääkis pulmadest. Hiljem hakkasid . Tütar Birgit ütles, et isa oli . Ta võis juua õlut, sest ta kuidagi hääletas kummaliselt.
Perel tulid erinevad diagnoosid. Lõpuks leiti, et tal oli ALS. Seda haigust põdes ka Jane Paberit, kes 2019. aastal Šveitis tegi u. ALS . On kindel, et inimesed surevad 2-5 aasta jooksul. Stein-Andersil oli . Kõne kadus esimesena, seejärel käed ja jalad. Lõpuks liikusid ainult silmad.
Anne-Ly keeldus korterist lahkumisest. Ta lubas koju jääda, kus tehes igapäevatööd. Poiss oskas kasutada silmadega juhitavat tahvelarvutit. Nii suhtles ta eestseisvate tahvlitega, helistas ja saatis sõnumeid. Samuti säilis . Anne-Ly ütles, ta , et vahetada seadust, sest see on .
Stein-Anders Rasmussen died last November. He was severely ill with ALS. He could only move his eyes. He wanted assisted suicide, but it is not allowed in Estonia. His family believes that the law should be changed. Because the current situation causes suffering for the person.
His wife Anne-Ly said that the first sign of the illness was Stein-Anders's crying. He cried with joy when daughter Birgit talked about weddings. Later, the words started to tremble. Daughter Birgit said that her father had a confused voice on the phone. He could drink beer, because somehow his voice sounded strange.
The family received different diagnoses. Finally, it was found that he had ALS. This disease was also suffered by Jane Paberit, who in 2019 performed assisted suicide in Switzerland. ALS destroys the nerves of the body. It is certain that people die within 2-5 years. Stein-Anders had a rapid decline both mentally and physically. Speech disappeared first, then hands and feet. Finally, only the eyes moved.
Anne-Ly refused to leave the apartment. She promised to stay at home, doing daily chores. The boy was able to use an eye-controlled tablet. Thus he communicated with tablets, called, and sent messages. Also, the owner remained optimistic and healthy. Anne-Ly said that she would ask for assisted suicide to change the law, because it is a human right.